[Correspondence] GDPR and data sharing: the Pediatric Cancer Data Commons experience

May, 05, 2024 | Select Oncology Journal Articles

In their Comment,1 James T Topham and colleagues emphasise the vital role that data sharing has in studying rare diseases. They cite reluctance to share as a key factor constraining progress in cancer research, with a main frustration being the restrictive policies of the General Data Protection Regulation (GDPR). They highlight the work of the International Cancer Genome Consortium as a case study of how sharing genomic data poses challenges.

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